I had my MRI last weekend and my Specialist should have the results by now of it, so I just wait till the 17th when I see him to discuss what was found or not found and what happens next. I am slightly freaked out about it as even though I want to know what is wrong so we can move on, I am also scared of knowing at the same time. The idea of MS is hard to handle, but I think it would be better than all the unexplained stuff I have at the moment. I worry about the impact of my health on our wee kids, it's hard having a continuous headache and not wanting too much noise or being tired a lot of the time, the elder two girls have been so grown up about it though, at 10 and 8 now they are more helpful and understanding and I am so lucky to have them.
But we have had some good things happening too, Mr O turned six last week, and Miss N was four on Monday! I started blogging when Mr O was a baby so I guess I have been doing this a while. Miss N is at full days Kindy which means I now have three school days a week to myself, I am taking a bit to get use to having no children around in the daytime, it's so quiet and strange.
All four kids have been skating this year, miss K set herself a goal of going to Nationals this year and with a lot of training and a supportive coaching team she got there. It was neat to see her set that goal and achieve it. Miss L has a new coach this year and her confidence is improving which is nice to see, and the little two have started learning, a lot of the time they just muck around playing on their skates but Mr O is doing his first competition this weekend which is very exciting for him. He is skating to a piece by the Piano Guys called Cello Wars so I have had to sort out a Luke Skywalker costume for him, he looks very cute dressed up.
This is our last competition for the year and it will be nice to have a break from training and lessons, in the lead up to nationals miss K spent upto 12 hours a week skating and I spent a lot of time sitting watching and keeping the other children amused, we have all earned the break while we head south for Christmas.
Anyway it's past my bedtime and I should sleep, just felt the need to write a bit before I slept. Love D
MRI tomorrow
Posted in on 9:38 PM by Azlemed
We have health insurance which I applied to three weeks ago to fund my MRI, because we are still in the three years where we have exclusions I was nervous that they would say this is preexisting and not fund it. Hence why I had started fundraising to cover it. I was pleasantly surprised on Wednesday when they rung and said yes they will fund 80% of the cost of my MRI. The money I have raised wil cover the difference and anything left will go towards my next specialist appointment cost.
I rung the MRI place to book in and got rung back yesterday and offered the chance of having it done tomorrow morning, naturally I didn't turn that down. I will see my specialist on the 17th, so hopefully by then we wil have a clearer idea of what is going on.
Love D
I rung the MRI place to book in and got rung back yesterday and offered the chance of having it done tomorrow morning, naturally I didn't turn that down. I will see my specialist on the 17th, so hopefully by then we wil have a clearer idea of what is going on.
Love D
Hello.. Anybody out there
Posted in on 9:14 AM by Azlemed
After struggling through most of this year I have decided to find my writing voice in the hope that it might make life somewhat easier, it's been one of those times when things could have been so much better, now life is pretty good, our kids are growing up so fast and becoming amazing people but my health which I thought was all good just isn't.
That all started in May with a splitting headache down one side of my head and a sore neck so I went to A&E to get checked out, I then found my arm was sore and it got worse from there. a CT scan revealed something not quite right so I then needed a MRI which has shown lesions in the right side of my brain.... Ok we thought this is pretty scary, by then my right leg wasn't able to hold my weight very well either and my foot was dragging. Freaky stuff at 36 years old.... I ended up spending over 14 days in hospital over two periods and was no further ahead in what was wrong.....
So now we fast forward a bit, it's November and I have been suffering with these headaches on one side of my head ever since then, the latest one has lasted 2 months. I have seen a neurologist and he prescribed migraine medications and sent me back to the care of my GP. Each medication hasn't worked, and after several months of this Ben and I made the decision to get a second opinion.
The second opinion meant we needed to go private, but it has been worth it. We saw the new specialist, he did a thorough neuro test of me and has many concerns about my lack of balance on the right, my over active reflexes, my continuous sore head, the weakness in my arm, so he recommended a second brain MRI so he can see what is happening or has changed since May.
It all sounds great, get an MRI, find out what is wrong, but private MRI cost money, which as a family of 6 we don't have a lot of so I have started fundraising using the amazing givealittle site. Asking for help is hard but I am doing it and so far we are 25% of the way to our goal of $2000.
Www.givealittle.co.nz/cause/MRIforDemelza is the link for my page,
So those are my problems, it will be ok I hope, one of the things the Dr is looking to confirm or rule out is Multiple sclerosis! it's scary stuff. We will cope though because that is what life is...
Love D
That all started in May with a splitting headache down one side of my head and a sore neck so I went to A&E to get checked out, I then found my arm was sore and it got worse from there. a CT scan revealed something not quite right so I then needed a MRI which has shown lesions in the right side of my brain.... Ok we thought this is pretty scary, by then my right leg wasn't able to hold my weight very well either and my foot was dragging. Freaky stuff at 36 years old.... I ended up spending over 14 days in hospital over two periods and was no further ahead in what was wrong.....
So now we fast forward a bit, it's November and I have been suffering with these headaches on one side of my head ever since then, the latest one has lasted 2 months. I have seen a neurologist and he prescribed migraine medications and sent me back to the care of my GP. Each medication hasn't worked, and after several months of this Ben and I made the decision to get a second opinion.
The second opinion meant we needed to go private, but it has been worth it. We saw the new specialist, he did a thorough neuro test of me and has many concerns about my lack of balance on the right, my over active reflexes, my continuous sore head, the weakness in my arm, so he recommended a second brain MRI so he can see what is happening or has changed since May.
It all sounds great, get an MRI, find out what is wrong, but private MRI cost money, which as a family of 6 we don't have a lot of so I have started fundraising using the amazing givealittle site. Asking for help is hard but I am doing it and so far we are 25% of the way to our goal of $2000.
Www.givealittle.co.nz/cause/MRIforDemelza is the link for my page,
So those are my problems, it will be ok I hope, one of the things the Dr is looking to confirm or rule out is Multiple sclerosis! it's scary stuff. We will cope though because that is what life is...
Love D
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